Dementia post-diagnostic support in UK rural communities: experiences of people living with dementia, informal caregivers, and healthcare professionals. A systematic review protocol.
Nicolas Farina, Dannielle Bilkey, Ben Hicks
Abstract
People living with dementia in rural areas experience numerous barriers to accessing post-diagnostic support. The aim of this systematic review is to identify and describe the experiences, barriers and provision of post-diagnostic support in UK rural areas; from the perspective of people living with dementia, healthcare professionals and informal caregivers. Systematic searches will be conducted in the following databases; SCOPUS, PubMed, PsychINFO and CINAHL Plus. Systematic review tool Rayyan.ai will be used to screen titles and abstracts, prior to full-text review. Following data extraction, The Critical Appraisal Skills Programme (CASP) will be used to appraise the quality of studies and assess risk of bias. The data will be deductively analysed through the lens of the Candidacy Framework's 6 dimensions, with a secondary inductive analysis capturing any themes that fall outside of the framework. Understanding the rural barriers and experiences of post-diagnostic support will allow researchers and stakeholders to develop and optimise specially tailored dementia interventions in line with the needs of people residing in UK rural communities.